Nothing about us without us
What does ethics mean to me? First off, I guess do no harm...but how do you guarantee that? What looks beneficial now may be harmful later. We have many examples of that. Secondly, I can suggest ethics based on social justice and equity, but I could easily ask whose justice, equity for whom? Certain people can be terrorists or freedom fighters depending on where you stand. When I was engaged with community research, I tried to cleave to the idea that the participants in the research needed to be involved in the ethical decisions about what could be done, what data could be collected. Which was fine until there happened to be results that did not sit well with the community. Were those results to be discarded? Those particular insights not shared widely? Who owned the data? So, I am left with thinking/feeling that ethics is very contextual, not without bias and emerges in time and space.
